This is a very interesting article from Dr. Diana Driscoll a Therapeutic Optometrist, Optometirc Glaucoma Specialist
You can find lots more information on her website:
- Blurred vision that comes and goes; difficulty in accommodation
- Diplopia (double vision) – out of one eye, or with both eyes open
- “Photophobia” (light sensitivity)
- Complete, or almost complete, loss of vision in one eye that lasts a few minutes; migraine auras, scintillating scotomas
- Dry eyes
- Tunnel vision
- Floaters (EDS patients have more floaters than the general population.)
- Flashes of light or a curtain over their vision
- Vision that is not fully correctable with glasses or soft contact lenses. (Doctors should perform corneal topography on all patients with unexplained blurred vision.)
- Myopia (nearsightedness) that increases very quickly
- Doctors and EDS patients must not assume that their symptoms are always due to their EDS and are therefore unactionable. For example, even among the EDS population, the number one cause of fluctuating vision is diabetes.
Optometric Glaucoma Specialist
Treatment of Keratoconus
- Intra-corneal ring segment inserts, such as “Intacs™”. These are small semi-circles that are inserted into the middle layer of the cornea, usually on the inferior portion of the cornea and can often return the patient to acceptable vision with glasses or contact lenses. They are also removable should the need arise.
- Corneal transplantation (or grafting): This may involve a penetrating keratoplasty (a full thickness transplantation or graft) or a lamellar keratoplasty (a partial thickness transplantation or graft). These transplants are generally successful (over 90%) primarily because the cornea does not have a vascular system which would normally transport the cells to reject a transplant. It is possible to see a graft begin to develop keratoconus, but this generally doesn’t begin to occur until at least 18 years after surgery.9
- There is an exciting new discovery that could change the prognosis and lives of keratoconic patients everywhere. Researchers have learned that by rinsing the cornea with riboflavin drops for about 30 minutes, then shining UV-A rays on the cornea for about 30 minutes (CR3) the collagen fibrils of the cornea develop stronger cross-links, strengthening the cornea. This corneal strengthening is resulting in the halt and even the reversal of keratoconic progression. The implications for the treatment of Type VI EDS, and the use of riboflavin and UV-A on the skin is also enticing for most researchers, and we eagerly await testing.10
- Please be aware that patients with EDS, and especially those with signs of keratoconus, are not candidates for radial keratotomy or LASIK refractive correction. Because of the abnormal structure of the collagen in the cornea, the patients are more prone to poor healing, corneal ectasias (bulging of the corneas after surgery), and a disappointing result. Orbscan and pachymetry results usually indicate areas of corneal thinning (prior to surgery).